The Legal & Ethical Issues Arising From Access & Linkage Of Administrative Data
From Elisabeth Barlow on May 12th, 2021
Drawing on the original research being undertaken by the Mason Institute as part of the ESRC-funded Administrative Data Research Centre-Scotland (ADRC-S), this lunch-time seminar will offer an overview of the regulatory context in which administrative data linkages currently operate in Scotland, highlighting the crucial legal and ethical issues which arise from the current mixed legal landscape under which administrative data linkages operate.
Adopting an approach that takes into account both the risks and the benefits that can be achieved through administrative data linkage research in the public interest, the speakers will argue for a principles-based approach to the governance of administrative data used for research purposes that both promotes ethical research in the public interest while delivering appropriate protection of the privacy and other interests at stake.
About the speakers
Ms Leslie Stevens (ESRC Research Fellow, ADRC-S; PhD Convenor, Mason Institute) and Professor Graeme Laurie (Chair of Medical Jurisprudence, Edinburgh Law School; Director, Mason Institute)